What it is
Most people with lupus live a normal lifespan with treatment, but some develop serious complications, such as kidney problems.
Hydroxychloroquine, steroids and other medicines that calm the immune system help control it. Sun protection is important.
Common signs
- Joint and muscle pain
- Extreme tiredness
- A rash, often across the cheeks and nose
- Sensitivity to sunlight
- Mouth ulcers
- Hair loss
- Fever
How it is usually diagnosed
- Blood tests, including ANA and anti-dsDNA
- Urine tests
- Other tests depending on the organs affected
Records worth keeping
Keeping these together makes each appointment easier, especially when you see a new doctor:
- Antibody and complement results
- Blood counts and kidney function over time
- Urine test results
- Rheumatology letters and a list of medicines
Questions to ask your doctor
- Which organs are affected?
- What should I do during a flare?
- How often do I need eye checks on hydroxychloroquine?
When to get help right away
Call 112 or go to the nearest emergency department if you have:
- Chest pain, severe breathlessness, seizures, or sudden swelling with much less pee: call 112
This page is general information. It is not a diagnosis and does not replace a doctor who knows your history. Medfold keeps your records organised; it does not interpret them.