What it is
It can occur on its own or alongside other autoimmune conditions such as lupus.
Treatment usually involves blood-thinning medicines, sometimes lifelong. In pregnancy, specific treatment and close monitoring greatly improve the chances of a healthy birth.
Common signs
- Blood clots in the legs (DVT) or lungs
- Stroke or mini-stroke at a young age
- Repeated miscarriages or other pregnancy complications
- A lacy, net-like rash on the skin
How it is usually diagnosed
- Blood tests for antiphospholipid antibodies, repeated at least 12 weeks apart
- Scans to confirm clots
Records worth keeping
Keeping these together makes each appointment easier, especially when you see a new doctor:
- Antibody test results with dates
- Reports of every clot and how it was found
- Anticoagulation records (INR results if on warfarin)
- Pregnancy and obstetric notes
Questions to ask your doctor
- How long will I need blood thinners?
- What should I do before surgery, travel or pregnancy?
- Which medicines, including the pill, should I avoid?
When to get help right away
Call 112 or go to the nearest emergency department if you have:
- A painful, swollen leg, or sudden breathlessness or chest pain
- Signs of a stroke: face drooping, arm weakness, slurred speech
- Heavy bleeding while on blood thinners
This page is general information. It is not a diagnosis and does not replace a doctor who knows your history. Medfold keeps your records organised; it does not interpret them.