What it is
There is no cure, but symptoms can be managed with eye drops, saliva substitutes, sugar-free gum and good dental care.
Some people need medicines that calm the immune system. Regular checks are recommended, as there is a slightly higher risk of lymphoma.
Common signs
- Dry, gritty or burning eyes
- A dry mouth and difficulty swallowing dry food
- Tooth decay
- Swollen glands at the side of the face
- Joint pain
- Tiredness
How it is usually diagnosed
- Blood tests for antibodies
- Tests of tear and saliva production
- Sometimes a lip biopsy
Records worth keeping
Keeping these together makes each appointment easier, especially when you see a new doctor:
- Antibody blood test results
- Eye test reports
- Rheumatology letters
- Dental records
Questions to ask your doctor
- What can help with dryness?
- How often should my eyes and teeth be checked?
- Which symptoms should I report quickly?
When to get help right away
Call 112 or go to the nearest emergency department if you have:
- A painful red eye with changes in vision: get urgent help the same day
- A new lump in the neck or a gland that stays swollen: see a doctor soon
This page is general information. It is not a diagnosis and does not replace a doctor who knows your history. Medfold keeps your records organised; it does not interpret them.