What it is
It usually gets worse over time, at different speeds in different people.
There is no cure, but antifibrotic medicines can slow the scarring. Pulmonary rehabilitation, oxygen and stopping smoking help, and a lung transplant is an option for a few people.
Common signs
- Shortness of breath, especially with activity
- A dry cough that does not go away
- Tiredness
- Rounded, swollen fingertips (clubbing)
- Weight loss
How it is usually diagnosed
- Listening to the chest for crackles
- Breathing tests (spirometry and gas transfer)
- High-resolution CT scan
- Lung biopsy, sometimes
Records worth keeping
Keeping these together makes each appointment easier, especially when you see a new doctor:
- Breathing test results over time
- CT scan reports
- Oxygen assessments
- Respiratory letters and a list of medicines
Questions to ask your doctor
- How quickly is my condition changing?
- Would antifibrotic medicine help me?
- Would pulmonary rehabilitation help?
When to get help right away
Call 112 or go to the nearest emergency department if you have:
- Sudden worsening breathlessness, chest pain or blue lips: call 112
This page is general information. It is not a diagnosis and does not replace a doctor who knows your history. Medfold keeps your records organised; it does not interpret them.