What it is
It often gets better without treatment within a few years. Some people have long-term symptoms.
If treatment is needed, steroids and other medicines that calm the immune system are used. Regular checks of the lungs, eyes and heart may be advised.
Common signs
- A persistent dry cough
- Shortness of breath
- Tiredness
- Tender red bumps on the shins
- Swollen glands
- Red, sore eyes
How it is usually diagnosed
- Chest X-ray or CT scan
- Blood tests
- Lung function tests
- A biopsy
Records worth keeping
Keeping these together makes each appointment easier, especially when you see a new doctor:
- Chest X-ray and CT reports
- Lung function results
- Biopsy reports
- Respiratory or specialist letters
Questions to ask your doctor
- Which organs are affected?
- Do I need treatment now?
- Which checks will I need, for example of my eyes or heart?
When to get help right away
Call 112 or go to the nearest emergency department if you have:
- Palpitations, fainting, chest pain or a sudden change in vision: get urgent help, call 112
This page is general information. It is not a diagnosis and does not replace a doctor who knows your history. Medfold keeps your records organised; it does not interpret them.