What it is
The cause is not known. It usually affects adults.
Treatment involves medicines that calm the immune system, such as steroids and other immunosuppressants, followed by long-term medicine to stop it coming back.
Common signs
- Blocked or crusty nose and nosebleeds
- Sinus pain
- Cough, sometimes with blood
- Shortness of breath
- Tiredness, fever and weight loss
- Blood in the pee
How it is usually diagnosed
- Blood tests, including ANCA
- Urine tests
- Chest scans
- A biopsy
Records worth keeping
Keeping these together makes each appointment easier, especially when you see a new doctor:
- ANCA and kidney function results
- Urine test results
- Scan and biopsy reports
- Specialist letters and medicine changes
Questions to ask your doctor
- Which organs are affected?
- How long will I need treatment?
- Which signs of a relapse should I watch for?
When to get help right away
Call 112 or go to the nearest emergency department if you have:
- Coughing up blood, severe breathlessness or peeing much less than usual: call 112
This page is general information. It is not a diagnosis and does not replace a doctor who knows your history. Medfold keeps your records organised; it does not interpret them.