What it is
It is long-term, but treatment can bring it under control and some people stop treatment eventually.
Treatment usually includes steroids and other medicines that calm the immune system. Blood tests and checks for side effects are part of care.
Common signs
- Painful blisters and sores in the mouth
- Blisters on the skin that burst easily
- Raw, sore areas that are slow to heal
- Pain when eating or swallowing
- A hoarse voice
How it is usually diagnosed
- Examination by a dermatologist
- A skin biopsy
- Blood tests for antibodies
Records worth keeping
Keeping these together makes each appointment easier, especially when you see a new doctor:
- Biopsy reports
- Antibody blood test results
- Dermatology letters
- Medicine lists and dose changes
Questions to ask your doctor
- How long will I need treatment?
- What side effects should I watch for?
- How can I care for my mouth and skin?
When to get help right away
Call 112 or go to the nearest emergency department if you have:
- Widespread blisters, signs of infection such as fever, or being unable to eat or drink: get urgent help, call 112
This page is general information. It is not a diagnosis and does not replace a doctor who knows your history. Medfold keeps your records organised; it does not interpret them.