Myositis

Also called Polymyositis, Dermatomyositis, or Inclusion body myositis

Myositis is a rare group of conditions that cause inflamed, weak and painful muscles. The main types are polymyositis, dermatomyositis, which also causes a rash, and inclusion body myositis. They are usually caused by the immune system. Weakness often affects the shoulders, hips and thighs.

Last updated Nov 9, 2026

What it is

Dermatomyositis in adults is sometimes linked to cancer, so screening tests are usually done.

Steroids and other medicines that calm the immune system, plus exercise and physiotherapy, help most types.

Common signs

  • Weakness in the shoulders, hips and thighs
  • Difficulty climbing stairs or lifting the arms
  • Muscle aches
  • Tiredness
  • A purple or red rash on the face, eyelids or knuckles in dermatomyositis

How it is usually diagnosed

  • Blood test for creatine kinase and antibodies
  • EMG
  • MRI of the muscles
  • Muscle biopsy

Records worth keeping

Keeping these together makes each appointment easier, especially when you see a new doctor:

  • Creatine kinase results over time
  • Antibody and biopsy results
  • MRI reports
  • Rheumatology or neurology letters

Questions to ask your doctor

  • Which type of myositis do I have?
  • Do I need cancer screening?
  • What exercise is safe for me?

When to get help right away

Call 112 or go to the nearest emergency department if you have:

  • Difficulty swallowing or breathing: call 112

This page is general information. It is not a diagnosis and does not replace a doctor who knows your history. Medfold keeps your records organised; it does not interpret them.

Sources