What it is
Bleeding can lead to iron deficiency anaemia.
Treatment aims to control bleeding and includes iron, nasal treatments, laser therapy and sometimes procedures for vessels in the lungs or brain. Screening is usually offered to family members.
Common signs
- Frequent nosebleeds
- Small red spots on the face, lips, tongue or fingers
- Tiredness from anaemia
- Bleeding from the gut, sometimes
How it is usually diagnosed
- Examination and family history
- Genetic testing
- Scans of the lungs, brain and liver
Records worth keeping
Keeping these together makes each appointment easier, especially when you see a new doctor:
- Genetic test result
- Scan reports
- Blood count and iron results
- A nosebleed diary
- Specialist letters
Questions to ask your doctor
- Do I need screening scans of my lungs or brain?
- What can reduce my nosebleeds?
- Should my children be tested?
When to get help right away
Call 112 or go to the nearest emergency department if you have:
- A nosebleed that will not stop after 30 minutes, coughing up blood, or a sudden severe headache: call 112
This page is general information. It is not a diagnosis and does not replace a doctor who knows your history. Medfold keeps your records organised; it does not interpret them.