What it is
Most children are successfully treated, especially when it is found early. Treatments include chemotherapy, laser or freezing treatment, radiotherapy and, sometimes, removing the eye.
Children with the inherited form need regular eye checks, and brothers and sisters may be offered screening.
Common signs
- A white reflection in the pupil, sometimes seen in photos
- A squint
- A change in the colour of the iris
- A red or swollen eye
- Poor vision
How it is usually diagnosed
- Eye examination under anaesthetic by a specialist
- Ultrasound or MRI scan
- Genetic testing
Records worth keeping
Keeping these together makes each appointment easier, especially when you see a new doctor:
- Specialist eye centre letters
- Scan reports
- Genetic test results
- Treatment plans and follow-up schedule
Questions to ask your doctor
- Is one or both eyes affected?
- What treatment do you recommend?
- Should other family members be checked?
When to get help right away
Call 112 or go to the nearest emergency department if you have:
- A white glow in a child's eye, or a new squint: see a doctor within days and ask for an urgent eye referral
This page is general information. It is not a diagnosis and does not replace a doctor who knows your history. Medfold keeps your records organised; it does not interpret them.