What it is
Treatment replaces the missing clotting factor, either regularly to prevent bleeds or when a bleed happens. Newer medicines can also help.
Care is usually managed by a specialist haemophilia centre.
Common signs
- Bleeding that takes a long time to stop
- Large or deep bruises
- Bleeding into joints, causing pain and swelling
- Nosebleeds that are hard to stop
- Bleeding after dental work
How it is usually diagnosed
- Blood clotting tests
- Clotting factor levels
- Genetic testing
Records worth keeping
Keeping these together makes each appointment easier, especially when you see a new doctor:
- Clotting factor levels and severity
- A treatment plan and bleed diary
- Haemophilia centre letters
- Emergency card details
Questions to ask your doctor
- How severe is my haemophilia?
- What should I do when a bleed starts?
- What do I need to tell a dentist or surgeon?
When to get help right away
Call 112 or go to the nearest emergency department if you have:
- A head injury, bleeding that will not stop, or a severe headache: call 112 and say you have haemophilia
This page is general information. It is not a diagnosis and does not replace a doctor who knows your history. Medfold keeps your records organised; it does not interpret them.