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Craniosynostosis

Also called Craniostenosis

Craniosynostosis is a condition present at birth in which one or more of the joins (sutures) between the bones of a baby's skull close too early. This makes the head grow into an unusual shape and, in some cases, can put pressure on the growing brain. It is different from a flat head caused by lying in one position, which is common and harmless.

Last updated Nov 9, 2026

What it is

It usually happens by chance, but sometimes it is part of a genetic syndrome.

Mild cases may only need monitoring. Many children have surgery in the first year or two of life to reshape the skull, carried out by specialist craniofacial teams.

Common signs

  • An unusually shaped head, for example long and narrow
  • A hard ridge along a suture
  • The soft spot on the head closing early
  • In some cases, signs of raised pressure such as vomiting and irritability

How it is usually diagnosed

  • Examination of the head shape
  • X-ray or CT scan of the skull
  • Genetic testing in some cases

Records worth keeping

Keeping these together makes each appointment easier, especially when you see a new doctor:

  • CT and X-ray reports
  • Craniofacial team letters
  • Operation notes
  • Head circumference measurements over time

Questions to ask your doctor

  • Which sutures are affected?
  • Does my child need surgery, and when?
  • Is it linked to a genetic condition?

When to get help right away

Call 112 or go to the nearest emergency department if you have:

  • A baby with repeated vomiting, unusual drowsiness, seizures, or a bulging soft spot: call 112

This page is general information. It is not a diagnosis and does not replace a doctor who knows your history. Medfold keeps your records organised; it does not interpret them.

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