What it is
Some people are born with one, and some families inherit a tendency to have several.
Cavernomas that cause no problems are usually monitored. Seizures are treated with medicines, and surgery or targeted radiotherapy may be offered if a cavernoma bleeds repeatedly.
Common signs
- Often no symptoms
- Seizures
- Headaches
- Weakness, numbness, or vision, balance or speech problems
- Problems with memory or attention
How it is usually diagnosed
- MRI scan of the brain or spine
- Genetic testing if there are several cavernomas or a family history
Records worth keeping
Keeping these together makes each appointment easier, especially when you see a new doctor:
- MRI reports, with dates to compare size and any bleeding
- Neurology and neurosurgery letters
- Seizure diary and medicines
- Genetic test results, if done
Questions to ask your doctor
- What is the risk of it bleeding?
- Does it need treatment or just monitoring?
- Can I drive, and are there activities or medicines I should avoid?
When to get help right away
Call 112 or go to the nearest emergency department if you have:
- A sudden severe headache, a first seizure, or sudden weakness, numbness or vision loss: call 112
This page is general information. It is not a diagnosis and does not replace a doctor who knows your history. Medfold keeps your records organised; it does not interpret them.